Alström Angels was formed in March of 2012 by Lynn and Cassie Johnston of Lubbock, Texas. It was then that their 3-year-old daughter, Bryce, was diagnosed with Alström Syndrome; one of the rarest and most devastating diseases in the world.
Through their shock and profound sadness from the diagnosis, Lynn and Cassie made a decision to do something positive for Bryce that would outshine her new, shattered reality. Due to the severe lack of funding and general knowledge of the rare disease, they decided to form an organization that could bring awareness to Alström Syndrome and generate funding for medical research. This decision was the beginning of Alström Angels.
Lynn and Cassie’s initial intent was three-fold: increase awareness of the disease so children could be diagnosed earlier, raise funds so more medical research could be conducted, and better family support for Alström families.
As their mission gained momentum, Lynn and Cassie realized they had an opportunity to help other children diagnosed with the individual aspects of Alström Syndrome, as well as help other families dealing with the difficulties of a rare disease. This grew into a secondary mission to benefit the children and communities of West Texas.
Secondary Mission; Community Transformation:
Through the efforts and fulfillment of the Alström Angels mission, we strive to bring awareness to the individual illnesses and disabilities associated with Alström Syndrome that affect other children in our local community.
Want to know more about Alström Angels? Click HERE
The 2017 BEEPball Tournament is presented by CarpetTech
Lubbock's only BEEPING baseball tournament is a community transformation project of Alström Angels.
Alström Angels is a 501 (c)(3) non-profit charity.